Timo Söderlund

Patient Advocate
Survivor of Aortic Dissection type A. Founder of patient organization, September 19 movement and active patient advocate globally.
  • Function: Other
  • Speciality: Other
  • Country: SE


Comment on Mar 09, 2020

Timo Söderlund commented on presentation A patient perspective on Aortic Disease.

»Dear reader. We have now soon been working one month on an update. If you have any proposals, please let me know. We probably will update to version 2.0 before end of March and close the editing phase some days before we release the update. / BIG HUG from Sweden / Timo Söderlund«
Comment on Feb 12, 2020

Timo Söderlund commented on presentation A patient perspective on Aortic Disease.

»Dear reader. I have been contacted by some researchers and doctors wanting to propose edits and additional material to the paper. I think this will lead to a work for a future version 2.0 of this material. If you feel you have something that you would like to bring up - do not hesitate to let me know. If proposals are used, a draft will be sent for approval to you before your proposals are entered into the material. The name of the contributor will also appear on page 3 - if that is a wish. You find my contact detail on page 2 in the material. Any comments are most welcome and appreciated / BIG HUG from Sweden / Timo Söderlund«

A patient perspective on Aortic Disease

The article provide the personal views, experiences and thoughts of one patient diagnosed with Bicuspid Aortic Valve syndrome (BAV), Familial Thoracic Aortic Aneurysm and Dissection (FTAAD) and Atrioventricular Block (AV block) since 2012. The author has no medical education. The contents are written in layman’s terms. You can read about one patient’s personal experience of aortic diseases.

February 10, 2020 2 Comments
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Aortic Disease Awareness Day – the idea behind it.

Speech made for a September 19 – Aortic Disease Awareness Day event hosted by Professor Germano Melissano and Dr Allesandro Pini for Aortic Surgeons, researchers and patients in Milano Italy, describing the idea and need from a patients perspective behind a common day to increase interest, understanding and awareness on rare aortic diseases.

September 25, 2019 No Comments
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